{"id":4424,"date":"2017-06-12T00:00:00","date_gmt":"2017-06-11T16:00:00","guid":{"rendered":"\/\/www.afterroberto.com\/?guid=e5e3e984747e9c38511c3b56623172d8"},"modified":"2018-08-21T12:17:48","modified_gmt":"2018-08-21T04:17:48","slug":"%e5%b0%88%e5%ae%b6%e6%9c%ad%e8%a8%98%ef%bc%9a%e7%97%85%e4%ba%ba%e8%88%87%e7%85%a7%e9%a1%a7%e8%80%85%e9%83%bd%e9%9c%80%e3%80%8c%e5%bf%83%e8%97%a5%e3%80%8d","status":"publish","type":"post","link":"\/\/www.afterroberto.com\/%e5%b0%88%e5%ae%b6%e6%9c%ad%e8%a8%98%ef%bc%9a%e7%97%85%e4%ba%ba%e8%88%87%e7%85%a7%e9%a1%a7%e8%80%85%e9%83%bd%e9%9c%80%e3%80%8c%e5%bf%83%e8%97%a5%e3%80%8d\/","title":{"rendered":"\u5c08\u5bb6\u672d\u8a18\uff1a\u75c5\u4eba\u8207\u7167\u9867\u8005\u90fd\u9700\u300c\u5fc3\u85e5\u300d"},"content":{"rendered":"

\u3010\u660e\u5831\u5c08\u8a0a\u3011\u70ba\u4e86\u7167\u9867\u665a\u671f\u75c5\u60a3\u8005\uff0c\u5bb6\u4eba\u9700\u66ab\u6642\u62cb\u958b\u5176\u4ed6\u6d3b\u52d5\uff0c\u6210\u70ba\u7167\u9867\u8005\uff0c\u5c08\u5fc3\u7167\u6599\u8eab\u60a3\u5371\u75be\u7684\u81f3\u89aa\u3002\u7167\u9867\u8005\u9664\u4e86\u8981\u300c\u843d\u624b\u843d\u8173\u300d\u53bb\u7167\u9867\u60a3\u8005\u7684\u751f\u7406\u9700\u8981\u53ca\u8655\u7406\u7c21\u55ae\u5fb5\u72c0\uff0c\u66f4\u53ef\u80fd\u6210\u70ba\u60a3\u8005\u767c\u6cc4\u4e0d\u5b89\u3001\u4e0d\u7518\u3001\u4e0d\u5feb\u7b49\u60c5\u7dd2\u7684\u5c0d\u8c61\uff1b\u6709\u4e9b\u7167\u9867\u8005\u66f4\u53ef\u80fd\u662f\u5bb6\u4e2d\u7684\u7d93\u6fdf\u652f\u67f1\uff0c\u8981\u4e00\u908a\u5de5\u4f5c\u627f\u64d4\u60a3\u8005\u7684\u91ab\u7642\u8cbb\u7528\uff0c\u4e26\u4e00\u908a\u64d4\u6182\u60a3\u8005\u6703\u5426\u51fa\u73fe\u7a81\u767c\u60c5\u51b5\uff0c\u6574\u5929\u300c\u5fc3\u639b\u639b\u300d\u3002<\/p>\n

\u53e6\u4e00\u65b9\u9762\uff0c\u5927\u5bb6\u4e00\u822c\u90fd\u6703\u628a\u670d\u52d9\u7126\u9ede\u653e\u5728\u60a3\u8005\u53ca\u5176\u9700\u8981\u7684\u7167\u9867\u4e0a\u3002\u9019\u5c0d\u60a3\u8005\u800c\u8a00\uff0c\u5f9e\u4e0d\u9593\u65b7\u3001\u7121\u5fae\u4e0d\u81f3\u7684\u7167\u9867\u53c8\u6703\u4ee4\u4ed6\u5011\u611f\u5230\u5167\u759a\uff0c\u6028\u6068\u81ea\u5df1\u4e0d\u4e2d\u7528\uff0c\u8ca0\u7d2f\u4f34\u4fb6\u53ca\u5bb6\u4eba\uff0c\u62d6\u7d2f\u4ed6\u5011\u672c\u61c9\u7cbe\u5f69\u7684\u751f\u6d3b\u3002\u64da\u52a0\u62ff\u5927\u591a\u502b\u591a\u5927\u5b78\u7814\u7a76\u54e1Gary Rodin\u53ca\u5176\u5718\u968a\u9577\u671f\u7814\u7a76\u767c\u73fe\uff0c\u60a3\u8005\u5c0d\u6b7b\u4ea1\u7684\u6050\u61fc\u53ca\u7126\u616e\u5f88\u5bb9\u6613\u8b8a\u6210\u6291\u9b31\u75c7\uff0c\u5c0d\u60a3\u8005\u53ca\u7167\u9867\u8005\u7684\u751f\u6d3b\u8cea\u7d20\u5f71\u97ff\u6df1\u9060\u3002\u60a3\u8005\u60c5\u7dd2\u4e0d\u7a69\u5b9a\uff0c\u8207\u7167\u9867\u8005\u65e5\u5e38\u5c0d\u8a71\u4e5f\u5bb9\u6613\u8b8a\u6210\u5435\u67b6\u3002\u5435\u67b6\u904e\u5f8c\uff0c\u5f7c\u6b64\u5fc3\u60c5\u66f4\u898b\u7cfe\u7d50\uff0c\u7167\u9867\u8005\u5247\u627f\u53d7\u4e86\u984d\u5916\u7684\u5fc3\u7406\u58d3\u529b\u3002Rodin\u4ea6\u767c\u73fe\u7576\u75be\u75c5\u767c\u5c55\u5230\u4e0d\u80fd\u75ca\u7652\u7684\u6642\u5019\uff0c\u60a3\u8005\u50be\u5411\u63a5\u53d7\u793e\u4ea4\u53ca\u5fc3\u7406\u4e0a\u7684\u6cbb\u7642\u591a\u65bc\u85e5\u7269\uff0c\u5e0c\u671b\u5f9e\u4e2d\u627e\u56de\u8207\u8eab\u908a\u4eba\u7684\u806f\u7e6b\u53ca\u751f\u547d\u7684\u610f\u7fa9\u3002<\/p>\n

\u5bb6\u5ead\u6703\u8b70\u3000\u8a02\u5b9a\u7167\u9867\u76ee\u6a19<\/p>\n

\u6fb3\u6d32Monash\u5927\u5b78\u7cbe\u795e\u75c5\u79d1\u5b78\u7cfb\u4e3b\u7ba1David Kissane\u6559\u6388\u6307\u51fa\uff0c\u6240\u6709\u9762\u5c0d\u665a\u671f\u75be\u75c5\u7684\u5bb6\u5ead\u90fd\u6709\u8cc7\u8a0a\u4e0a\u7684\u9700\u8981\uff0c\u4ee5\u6e1b\u4f4e\u5bb6\u5ead\u6210\u54e1\u7684\u7126\u616e\u3002\u4ed6\u8a8d\u70ba\u63d0\u4f9b\u7d13\u7de9\u6cbb\u7642\u6216\u5b89\u5be7\u670d\u52d9\u7684\u6a5f\u69cb\uff0c\u90fd\u9700\u8981\u793e\u5de5\u6216\u5fc3\u7406\u5b78\u5bb6\u5411\u60a3\u8005\u5bb6\u5ead\u63d0\u4f9b\u9069\u5207\u7684\u5fc3\u7406\u7167\u9867\u3002\u6709\u5e7e\u985e\u5bb6\u5ead\u9700\u7279\u5225\u95dc\u6ce8\uff1a<\/p>\n

1. \u6709\u5e74\u5e7c\u6216\u5c1a\u9700\u7167\u9867\u7684\u5152\u5973\uff0c\u5c24\u5176\u55ae\u89aa\u6216\u5152\u5973\u6709\u6b98\u969c\u7b49\u7279\u6b8a\u9700\u8981\u7684\u5bb6\u5ead<\/p>\n

2. \u6e9d\u901a\u4e0d\u8db3\u6216\u6210\u54e1\u9593\u6709\u885d\u7a81\u7684\u5bb6\u5ead<\/p>\n

3. \u751f\u6d3b\u689d\u4ef6\u4e0d\u4f73\uff0c\u4e14\u4e0d\u6b62\u4e00\u500b\u6210\u54e1\u60a3\u6709\u665a\u671f\u6216\u9577\u671f\u75be\u75c5\u7684\u5bb6\u5ead<\/p>\n

Kissane\u6559\u6388\u8a8d\u70ba\u5b89\u5be7\u7167\u9867\u5718\u968a\u8207\u5bb6\u5ead\u7684\u8a0e\u8ad6\u6703\u8b70\u975e\u5e38\u91cd\u8981\uff0c\u80fd\u8b93\u5718\u968a\u4e86\u89e3\u60a3\u8005\u8207\u5bb6\u4eba\u9762\u5c0d\u7684\u96e3\u984c\uff0c\u4e26\u5171\u540c\u8a02\u7acb\u7167\u9867\u76ee\u6a19\uff0c\u4f7f\u60a3\u8005\u53ca\u5bb6\u4eba\u611f\u5b89\u5fc3\u3002<\/p>\n

\u966a\u6668\u904b\u716e\u98df\u3000\u6383\u9664\u5b64\u55ae\u611f<\/p>\n

\u9664\u4e86\u5728\u5b89\u5be7\u670d\u52d9\u6a5f\u69cb\u53ca\u9662\u820d\u7576\u4e2d\u70ba\u5bb6\u5ead\u63d0\u4f9b\u5c08\u696d\u7167\u9867\u5916\uff0c\u9130\u91cc\u9593\u4e92\u76f8\u7167\u61c9\u4e5f\u5341\u5206\u91cd\u8981\u3002\u82f1\u570bBradford\u5927\u5b78\u7684Allen Kellehear\u6559\u6388\u5728\u672c\u5e74\u7684\u300c\u8cfd\u99ac\u6703\u5b89\u5be7\u980c\u300d\u5b89\u5be7\u7167\u9867\u7814\u8a0e\u6703\u4e0a\uff0c\u4ecb\u7d39\u4e86\u95dc\u611b\u793e\u5340\uff08Compassionate Community\uff09\u7684\u6982\u5ff5\u3002\u5728\u793e\u5340\u4e2d\u4fc3\u9032\u53cb\u5584\u7684\u63a5\u89f8\u4ea4\u6d41\uff0c\u65e2\u80fd\u6539\u5584\u5927\u773e\u5c0d\u5b89\u5be7\u670d\u52d9\u53ca\u665a\u671f\u75be\u75c5\u7684\u8a8d\u8b58\uff0c\u4e5f\u80fd\u4f7f\u60a3\u8005\u53ca\u7167\u9867\u8005\u5728\u9019\u6bb5\u751f\u547d\u6b77\u7a0b\u4e2d\u5145\u6eff\u7f8e\u597d\u7684\u8a18\u61b6\u3002\u5373\u4f7f\u7c21\u55ae\u5230\u966a\u4f34\u7167\u9867\u8005\u53ca\u60a3\u8005\u4e00\u8d77\u6668\u904b\uff0c\u6216\u8a0e\u8ad6\u5065\u5eb7\u716e\u98df\u7684\u5fc3\u5f97\uff0c\u4ea6\u80fd\u5920\u4ee4\u7167\u9867\u8005\u611f\u5230\u81ea\u5df1\u4e26\u4e0d\u5b64\u55ae\u3002\u4e00\u4e9b\u8b9a\u8cde\u53ca\u9ad4\u8ad2\u7684\u8aaa\u8a71\uff0c\u4ea6\u80fd\u4ee4\u7167\u9867\u8005\u53ca\u60a3\u8005\u611f\u5230\u81ea\u5df1\u6d3b\u5f97\u6709\u610f\u7fa9\u3002<\/p>\n

\u300c\u8cfd\u99ac\u6703\u5b89\u5be7\u980c\u300d\u8a08\u5283\u8996\u6574\u500b\u5bb6\u5ead\uff08\u60a3\u8005\u53ca\u5bb6\u4eba\u7167\u9867\u8005\uff09\u70ba\u670d\u52d9\u5c0d\u8c61\u3002\u8a08\u5283\u7d50\u5408\u8de8\u754c\u5225\u529b\u91cf\uff0c\u63d0\u4f9b\u7167\u9867\u77e5\u8b58\u3001\u7fa9\u5de5\u5230\u6236\u670d\u52d9\u53ca\u5168\u4eba\u8eab\u5fc3\u793e\u9748\u7167\u9867\uff0c\u70ba\u665a\u671f\u75c5\u8005\u53ca\u5176\u5bb6\u4eba\u63d0\u4f9b\u652f\u63f4\uff0c\u6e1b\u8f15\u7167\u9867\u8005\u7684\u8ca0\u64d4\uff0c\u6539\u5584\u60a3\u8005\u8207\u5bb6\u4eba\u7684\u6e9d\u901a\uff0c\u63d0\u5347\u751f\u6d3b\u8cea\u7d20\u3002<\/p>\n

\u96fb\u8a71\uff1a3917 1221<\/p>\n

\u7db2\u5740\uff1awww.jcecc.hk<\/a><\/p>\n

Facebook\uff1ajcecc.hk<\/p>\n

\u6587\uff1a\u9673\u9e97\u96f2\uff08\u9999\u6e2f\u5927\u5b78\u300c\u8cfd\u99ac\u6703\u5b89\u5be7\u980c\u300d\u9805\u76ee\u7e3d\u76e3\uff09<\/p>\n

\/\/www.afterroberto.com\/wp-content\/uploads\/2017\/07\/M70515c.jpg;<\/inline><\/p>\n","protected":false},"excerpt":{"rendered":"

【明報專訊】為了照顧晚期病患者,家人需暫時拋開其他活動,成為照顧者,專心照料身患危疾的至親。照顧者除了要「落手落腳」去照顧患者的生理需要及處理簡單徵狀,更可能成為患者發泄不安、不甘、不快等情緒的對象;有些照顧者更可能是家中的經濟支柱,要一邊工作承擔患者的醫療費用,並一邊擔憂患者會否出現突發情况,整天「心掛掛」。<\/p>\n

另一方面,大家一般都會把服務焦點放在患者及其需要的照顧上。這對患者而言,從不間斷、無微不至的照顧又會令他們感到內疚,怨恨自己不中用,負累伴侶及家人,拖累他們本應精彩的生活。據加拿大多倫多大學研究員Gary Rodin及其團隊長期研究發現,患者對死亡的恐懼及焦慮很容易變成抑鬱症,對患者及照顧者的生活質素影響深遠。患者情緒不穩定,與照顧者日常對話也容易變成吵架。吵架過後,彼此心情更見糾結,照顧者則承受了額外的心理壓力。Rodin亦發現當疾病發展到不能痊癒的時候,患者傾向接受社交及心理上的治療多於藥物,希望從中找回與身邊人的聯繫及生命的意義。<\/p>\n

家庭會議 訂定照顧目標<\/p>\n

澳洲Monash大學精神病科學系主管David Kissane教授指出,所有面對晚期疾病的家庭都有資訊上的需要,以減低家庭成員的焦慮。他認為提供紓緩治療或安寧服務的機構,都需要社工或心理學家向患者家庭提供適切的心理照顧。有幾類家庭需特別關注:<\/p>\n

1. 有年幼或尚需照顧的兒女,尤其單親或兒女有殘障等特殊需要的家庭<\/p>\n

2. 溝通不足或成員間有衝突的家庭<\/p>\n

3. 生活條件不佳,且不止一個成員患有晚期或長期疾病的家庭<\/p>\n

Kissane教授認為安寧照顧團隊與家庭的討論會議非常重要,能讓團隊了解患者與家人面對的難題,並共同訂立照顧目標,使患者及家人感安心。<\/p>\n

陪晨運煮食 掃除孤單感<\/p>\n

除了在安寧服務機構及院舍當中為家庭提供專業照顧外,鄰里間互相照應也十分重要。英國Bradford大學的Allen Kellehear教授在本年的「賽馬會安寧頌」安寧照顧研討會上,介紹了關愛社區(Compassionate Community)的概念。在社區中促進友善的接觸交流,既能改善大眾對安寧服務及晚期疾病的認識,也能使患者及照顧者在這段生命歷程中充滿美好的記憶。即使簡單到陪伴照顧者及患者一起晨運,或討論健康煮食的心得,亦能夠令照顧者感到自己並不孤單。一些讚賞及體諒的說話,亦能令照顧者及患者感到自己活得有意義。<\/p>\n

「賽馬會安寧頌」計劃視整個家庭(患者及家人照顧者)為服務對象。計劃結合跨界別力量,提供照顧知識、義工到戶服務及全人身心社靈照顧,為晚期病者及其家人提供支援,減輕照顧者的負擔,改善患者與家人的溝通,提升生活質素。<\/p>\n

電話:3917 1221<\/p>\n

網址:www.jcecc.hk<\/a><\/p>\n

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文:陳麗雲(香港大學「賽馬會安寧頌」項目總監)<\/p>\n

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